题
提问人的希拉·伯格
十几岁的偏头痛,504个计划和疼痛
我16岁的,在学术上有天赋的学生刚刚由小儿神经诊断为慢性偏头痛。我们正在开会下周讨论她(CA学校)一504计划,我想知道我们是否应该寻找别的除了修改和延长时间的化妆工作。她的老师一直支持到目前为止,但没有结束的迹象,我们正在寻找长期的住宿,并确保我们有她的覆盖。
至于她的偏头痛问题去......今天是她目前的偏头痛的第18天。她根本无法发挥做任何工作现在。她被告知,如果neccessary只能采取抢救吃药(MAXALT)2天一个星期。医生认为她从IMITREX反弹偏头痛。我怎样才能让她受这样的吗?任何有识之士将不胜感激。
回答
嗨希拉,没有人愿意看到自己的孩子受到任何的痛苦,我明白这一点,可以同情你。我讨厌看到我处于困境的儿童。我要地址的几个点,所以忍耐一下,好不好?首先,我很高兴你采取行动,与学校,他们正在以他们的方式积极主动。是不是真的有一个504计划,让学生一个答案。大部分的答案取决于你女儿的触发偏头痛,当然,她的个性化需求。您可能希望有她的两个高中辅导员和她的医生对这个话题的对话。她的医生应该能够帮助帮助您预知她的需求,以及辅导员将有什么其他的学生已经完成,我们已经在我们的论坛中一个线程调用Chilrdren和偏头痛的是解决这些问题的经验。这里是链接,请快点过去看看吧。许多家长,你现在在哪里; Children and Migraine. She really can't continue to go on with this continued daily pain. Has the doctor offered anything to break the cycle? Unfortunately, there can be times when a Migraine just doesn't respond to the medications we have, and it goes on and on. Seeing as her regular medications haven't stopped this Migraine, it's time to talk to the doctor about breaking this cycle. Sometimes, a steroid taper such as a Medrol DosePack will break the Migraine. Sometimes, the best treatment for intractable Migraines that aren't responding to medications is IV infusion therapy to get the cycle broken. For more information, see IV Treatment of Refractory Migraine. Which leads me into my next point. It may be a good idea to see a "true" Migraine specialist. I say that often here, but it really is the one thing that can make all the difference in the world. You see while neurologists may be fine doctors, they have a hard time being experts in one area. This is because they treat so many conditions like MS, epilepsy and stroke. A Migraine specialist is just that, an expert who treats one condition - your daughters - Migraines and headache disorders. When you get a chance, take a look at article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists. I hope you find this information helpful, please let me know how you make out, Nancy